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Past Walks

Past Walks

Past Walks

Past Letters from The Parrish Family

 

It's hard to believe we are embarking on our 7th year raising money for MDA/Seek-a-Miracle, a cure for Friedreich's Ataxia!!  As always, we are hoping for an even bigger and better year - with more teams, more walkers, more door-prizes and HOPEFULLY your help, plus a few surprises to mix it up!!

 

Just a little update ~ Lindsey, 19 is attending and living on campus at Malone University.  She does show more signs of progression, mainly with her stability but is loving the college life (scooter and all!) - she is currently involved in an FA cardiac study at OSU and is your typical 19 year old with a few extra challenges from her FA but doing well.    In April of 2008 we were saddened to find out Emily, 16 - too has Friedreichs Ataxia.  Emily, at this time does not show too much of the typical FA progression and is finishing a clinical trial in Philadelphia.  We traveled monthly for 18 months to monitor her and are very hopeful that our help with walk-a-thons and other fundraising has moved our cure for FA even closer!!  There are many FA clinical trials in progress and upcoming - both girls are eager to help, but must meet all criteria levels to be able to participate!     Kendra is noted as a "carrier" - just like Jim and I - never to develop FA and it's side-effect, thank goodness for her!  To find out more about Friedriechs Ataxia you can go to www.curefa.org  - it's unbelievable what is happening in the FA world!All this research has been inspired by fundraisers like our walk-a-thon and your help!  Thank you!

   

7th Annual Parrish Family

Walk-a-thon

Sunday, April 25th @ 1pm in the

New Philadelphia HS gym

 

Thanks again for helping us and helping fund research for a cure for Friedreichs Ataxia ~ The Parrish family

 

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A Letter from the Parrish Family:
On April 25th (2009), the Parrish family will host their sixth annual MDA/ SAM "Parrish family” Walk-a-thon and it will again be held at the New Philadelphia High School gymnasium.  This event raises awareness and funds to benefit research with the Muscular Dystrophy Association and Seek a Miracle.  Helping people with neuromuscular diseases and our quest, hope of a cure one day in the near future, for Friedreich’s Ataxia.  Although economic times are tough, we know many will still want to help and need tax deductions!

Lindsey was diagnosed with Friedreich’s Ataxia (FA) in 2003 and we have hosted with the Muscular Dystrophy Association many fundraisers, including our annual walk-a-thon and raised more than $125,000.00.  We are VERY excited to improve our results from the previous years because we are finally seeing results from our earlier fundraising!  There is several clinical trials in progress that may help slow down Lindsey’s progression or may even reverse it, strengthening weaknesses within her disorder.  Helping her and many others, who are not as fortunate to still be as mobile and we are very hopeful!  Lindsey’s progression is noticeable but with the help of others, she does as much as any 18 year old and will soon begin college in the fall.

In April of 2008, we decided to have our other two daughters genetically tested and were given the devastating news that Emily is also affected with this debilitating disease.  Emily does not show any signs of her FA and is currently in a drug trial that takes us to Philadelphia monthly and is waiting on FDA approval.  All trials and research currently being funded need our help and we are hoping you will help us build a bigger and stronger event in 2009!!  WE NEED YOU!! 

You can also help by sharing this message with everyone you know ~ we will take any donation of sponsorship ~ BIG or SMALL ~ and from any company, group or individual!

All donations are tax deductible and are going exclusively to help fund a "cure" for Friedreich's Ataxia and the girls!  Checks should be made out to MDA/SAM (Muscular Dystrophy Association/Seek A Miracle) and can be mailed to

“The Parrish Family”
393 Schoenbrunn Dr. NE
New Philadelphia, OH. 44663

By responding and donating, you are helping all those with FA and both Parrish girls ~ We all THANK YOU so much!!!   If you are in Ohio, and  interested in participating in the MDA/SAM “Parrish family” Walk-a-thon we would be thrilled to have you!  Anyone interested in walking is welcome however only those with a minimum of $100 sponsorship will receive an exclusive commemorative t-shirt – attendance the day of the event is required to receive your t-shirt!  The walk-a-thon event also consists of door prizes, refreshments and awards for top sponsorships – it’s a great family event!  In past years we have had as many as 120 walkers, including 90 in 2008 with an overnight snowfall of 20 inches!
    
If you need additional information or have any questions - you can email us at parrish86@roadrunner.com or call @ 330-308-0699.  We welcome all!!  Again, thank you in advance for your help and exposure of awareness in this event!

Sincerely,
The Parrish Family
Jim, Sandy, Lindsey, Emily & Kendra

 

 

 

 

 

 

 

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From the 2013 Walk

We would like to invite you to participate/or donate to

 

The 10th Annual Parrish Family Walk-A-Thon

 

 

 

To benefit research with the Muscular Dystrophy Association.  Helping people with neuromuscular diseases, such as the Parrish girls disorder, Friedreich’s Ataxia. Raising HOPE for a cure one day in the near future!  

 

 

When: Sunday, April 14th beginning @ 1:00pm

 

 (Registration @12:00 pm w/ team organizing and refreshments!)

 

Where: New Philadelphia High School Gymnasium  

 

Host of the event:  The Parrish family & The Muscular Dystrophy Association

 

All donations are tax deductible and are raised exclusively to help fund research for a "cure" for Friedreich's Ataxia and many like the Parrish girls! 

 

 

 

Checks should be made out to MDA/SAM

 

(Muscular Dystrophy Association/Seek A Miracle) 

 

 

 

~ EVENT INFORMATION ~

 

ALL money is turned in the day of the walk or to your team leader before April 14th.  

 

Checks should be made out to MDA/SAM 

 

Walk-a-thon is held at NPHS, in the gymnasium – walk begins at 1pm (registration at 12:00pm - NOON) and will last a couple hours – good or bad weather - each participant is part of a team or can be the team leader of their own team.  Each teams goal is to have as many members as they like and the more money donated, the better your chances are at being recognized as the top team! 

 

Anyone may participate in walking with any donation however, with a minimum of $100 money raised per person each “walker” will receive an exclusive commemorative t-shirt to keep, to wear during the event and participation door prize tickets.  (In the event a walker cannot participated the day of the walk, but would like to be on a team and raise money – ALL DONATIONS ARE WELCOME!)$100 pays for approximately 1 minute of research – the more money raised the more research funded!

 

W are VERY excited to improve our totals from the previous years because we are finally seeing results from our earlier fundraising!  There are several clinical trials in progress that may help slow down disease progression or even reverse it.  All those currently being funded need our help and we are hoping you will help us build a bigger and stronger event in 2013!!

 

  WE NEED YOU!!

 

Please contact Sandy Parrish (330)308-0699 or email: parrish86@roadrunner.com with any additional questions you may have!

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